Autofacial syndrome was present at birth in Joseph Williams, now 41 years old and from Chicago. Because he was born without a jaw. He communicates through the use of sign language and notes. Welder plans to pursue a career as a DJ after tying the knot with his bride Vanya, who’s 39 years old. The natural world has contributed in one.
Way or another to the uniqueness of. Each individual human being in this globe. If the structure of a person’s body. Is quite different from another person’s body, then that person’s thoughts and ways of thinking are also very distinct. Many times people have no choice but to succumb to such bizarre diseases and disorders, which as a result, caused their bodies to begin to appear differently. One such individual lives in the United States of America. This person was born without a jaw and as a result, his life is extremely challenging.
A man who endured severe bullying throughout. His life as a result of being born with half of his face missing. Has revealed that he no longer lets. His condition hold him back and that he is married since improving his self esteem. The man’s revelation comes after he was. Born with half of his face missing. Joseph Williams, now 41 years old and. From Chicago, was born without a jaw. Due to an extremely rare illness known as Autofacial syndrome.
He was diagnosed with this problem at birth. The Welder stated that despite the fact that others have shied away from him out of fear, he has not allowed his disability to prevent him from participating in any aspect of life. Joseph is now a happily married man who adores going on adventures and spending. Time with his friends and family. After meeting his wife Vanya, who is. 39 in 2019, joseph, who is unable to determine what caused the syndrome, is.
Able to communicate through the use of. Sign language, gestures, notetaking and his mobile phone. He consumes food that’s mixed and fed. To him through a tube that’s placed into his stomach. According to Joseph, my birth mother was. Taken aback by the fact that I was born without a jaw. I was a twin, but the other. Baby was still born before we were born. I am an only child. When I was only a few days. Old, I was transferred from Illinois, where I was born, to Chicago where I underwent many operations.
They tried to construct the jaw for. Me by giving me a bone graft and a skin graft, but as I developed, my body rejected it and the procedure was unsuccessful. And in addition to that, I was. Given up for adoption, which ultimately resulted. In my getting to know my new family. Growing up was challenging and the fact that I was born in this manner. Has presented me with many challenges. Yet I’ve made an effort to not.
Let it impact me. I’m having trouble eating, speaking and even breathing normally because I have a tube. Implanted in my stomach, I’m only able to consume pureed foods. As a result, I have no experience with the flavor of real food. I was born with a tube in. My neck known as a trachea, which is responsible for facilitating my breathing. And when I was just two years old, in order to assist me in communicating, I was taught sign language. However, since that time, I’ve also discovered other ways that can assist me in communicating, such as creating notes and typing into my phone. As a result of his illness, Joseph.
Had a challenging childhood and spent the. Rest of his life having to deal with people avoiding him and picking on him. He freely acknowledges that there are moments. When he feels like crying in private. And that he’s even entertained the idea. Of ending his own life. However, he constantly tells himself that he was born the way he is for a reason and that all he needs to do to show people who he truly is is to show them that reason.
Joseph stated even though I am aware. That I am unique and that there. Are others who may find my appearance repulsive and choose not to accept me, I’m still a human being with a. Brain, a heart and a set of feelings. I should be treated with respect the. Same way everyone else should be treated, just like everyone else should. I would like it if people would Just walk up to me and ask. Me questions instead of looking at me.
And pointing at me. When I was younger, everyone did their best to shield me from the world. By telling me I was incapable of. Doing this or that. However, I didn’t want my condition to slow me down and I didn’t want to be constrained in any way. He said dating was also challenging for. Me because I had such a poor. Self esteem and felt like I was useless. But as I started believing in myself. And realized that I deserved more, I ended up finding my wife. We had a meeting and work together toward the end of 2019. After we started conversing, she acknowledged that.
She thought I was a part of a gang and that’s what caused me. To lose my jaw. At first we were just friends, but gradually we started dating and we ended. Up falling in love. We got married in 2020. I’m certain that nobody would have ever anticipated that I would get married. To tell you the truth, I didn’t. Believe that I would either. Joseph is passionate about music, in part because it allows him to express himself through that medium. He enjoys playing the drums and DJing.
In his spare time. Joseph continued by saying one day I hope to have the opportunity to work as a DJ. Although I don’t always find it easy to communicate, music has always been a medium through which I can express myself. Even though there are times when I just want to hide away from the. Rest of the world and cry. I have to remind myself that there’s a purpose behind why God created me. The way that I am. He entrusted me with this burden because he was confident in my ability to carry it.
Being born without a jaw has provided. Me with a unique perspective on life. And it’s played a significant role in. Shaping who I am. Now people take a break from what. They’Re doing in order to stare at me, and it may be grading. Even one person has actually stopped his car, turned around and driven by just to get a better look at me. People simply stare at me like I’m. A deer caught in headlights. And I wish they’d talk to me.
And ask me questions instead of doing that. How difficult is it to get by. Without having a jaw? Now the subject of how challenging it. Is to survive without a jaw has been raised. They are unable to put food directly. Into their mouths and consume it. They have to water the food down and then administer it straight into the stomach. In order to accomplish this, a tube is inserted into the stomach. In addition, he has a tube in.
His neck known as a trachea, which. Allows him to breathe. They’re able to breathe more easily as. A result of this tube. Sign language has been taught to him. Ever since he was two years old so that he can communicate with others. He explained that his mother was equally shocked to see him when he was born and that when he was a little child, he was given up for. Adoption to another family. Joseph got Vania’s support. He reported that he had no interactions.
With other people, leading to widespread mistrust in his abilities. He did not go on many trips. And he did not interact with many people. He eventually started to become his own parent. These days, the majority of communication with. Others takes place solely in the form. Of text messages or notes sent and received on his mobile device. Also, when he was a toddler, physicians. Gave him a fake jaw. But as he grew older, his body.
Didn’T adapt to having it. Vanya, a young woman he had met at his previous job, developed feelings for him and eventually became his girlfriend. Not Joseph’s outer appearance, but rather his heart, was what Vanya observed in the year 2020. They tied the knot, and Joseph is. Ecstatic for them both. Now that they’re married, he claims that he never entertained the idea that he would tie the knot one day. The exceptionally rare lifelong condition which sees children born without a jaw outofacial syndrome is a rare congenital deformity in which.
A person is born without a mandible. And without a chin. In nearly all cases, the child does. Not survive because it’s unable to breathe and eat properly. Even with reconstructive surgery, the tongue is extremely underdeveloped often making unaided breathing and swallowing impossible. The first challenge to survival is assisting. Breathing and tumble feeding.
This is a lifelong affair, generally requiring. The patient to spend nearly all of their time under direct hospital care. In 2008, Alan Doherty, then 19, from Donegal, was propelled into the national spotlight. When he embarked on an 18 month series of operations for a new chin. His parents had been told he was. Unlikely to survive at birth, and he spent much of his early life in the hospital. While he could manage not being able.
To talk or swallow, he found it. Difficult to deal with people constantly staring. At him in the street. After a huge fundraising effort by friends, family and other people in the local. Area, he became the first person to. Have a series of operations to create a new jaw and chin. In a process of nine different operations, doctors took a piece of bone from. His hip and carved it into the shape of a jaw. They then implanted the bone into his back to help it grow nerves and supportive tissue around it. Later, it was removed before it was then attached to his face with extra tissue added to make his new chin look as realistic as possible.
However, in 2009, he questioned whether he. Should have had gone through with the surgery. Speaking to the Irish independent, he said. He’D been left with facial scarring and deep scars on his back and groin. From the operations, he said, I didn’t. Expect to be all destroyed and messed up. If I were made aware of how my back and jaws would turn out like before I went through with many. Operations, then maybe I wouldn’t have gone through with them.